The Burden of Primary Caregivers of Spinal Muscular Atrophy Patients and Their Needs

ACAR A. E. , Saygi E. K. , Imamoglu S., Ozturk G., ÜNVER O., Ergenekon P., ...More

TURKISH ARCHIVES OF PEDIATRICS, vol.56, no.4, pp.366-373, 2021 (Peer-Reviewed Journal) identifier identifier identifier

  • Publication Type: Article / Article
  • Volume: 56 Issue: 4
  • Publication Date: 2021
  • Doi Number: 10.5152/turkarchpediatr.2021.20117
  • Journal Name: TURKISH ARCHIVES OF PEDIATRICS
  • Journal Indexes: Emerging Sources Citation Index, Scopus, TR DİZİN (ULAKBİM)
  • Page Numbers: pp.366-373

Abstract

Aim: This study aims to reveal the problems faced by families of children with spinal muscular atrophy (SMA), by evaluating their care burden, needs, and expectations.